With Research, Possibilities Are Limitless

By Joseph Chiao, MD

February 23, 2017

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As we look ahead to spring, which is always a busy time for all of us at CSL Behring, we join the hereditary angioedema (HAE) and rare disease communities around the world in celebrating the 10th international Rare Disease Day on February 28. Every year at this time, we proudly join with hundreds of patient organizations worldwide to raise awareness of rare diseases and their impact on people’s lives.

There are upwards of 7,000 rare diseases, with approved treatments for only 5% of these. HAE, a rare and potentially life-threatening genetic condition, occurs in about 1 in 10,000 to 1 in 50,000 people.  People with HAE can have considerable swelling episodes referred to as angioedema, which can affect many parts of the body, including the face, abdomen, larynx and extremities.

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Rare Disease Day Focuses International Attention on the Rare Disease Community

Rare diseases are an important public health issue.

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February 12, 2015

By Peter L. Saltonstall

Each year since 2009, the National Organization for Rare Disorders (NORD) has been the official U.S. sponsor of Rare Disease Day®1. This is a day celebrated around the world that is dedicated to elevating public understanding of rare diseases and to calling attention to the special challenges faced by the rare disease community.
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